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Research Data Management
Services and tools available to researchers for managing data
Help with sensitive data
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Sensitive Data Toolkit for Researchers, pt. 1 Glossary of termsPrepared by Portage Network Sensitive Data Experts Group
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Sensitive Data Toolkit for Researchers, pt. 2 Data risk matrixThis tool, the Human Participant Research Data Risk Matrix, is intended to help researchers determine risk level for human participant research data, and make decisions with respect to its management, deposit, and appropriate access/future use. (Introduction)
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Sensitive Data Toolkit for Researchers, pt. 3 Informed consent languageThis tool, Research Data Management Language for Informed Consent, is intended to assist researchers working with sensitive data in the development of tailored, deposit-friendly language for ethics approval and informed consent. The key principle of this tool is Adaptation, Not Adoption. Sample text is provided to address a number of informed consent considerations ... (Introduction)
De-identification
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Guidance on De-Identification for Qualitative Data: resource prepared by the Qualitative Data Repository at Syracuse University.
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De-identification Guidelines for Structured Data (PDF): guidance on de-identifying quantitative data from the Information and Privacy Commissioner of Ontario.